Is there really a difference? My Colorado Medical Team ignored an obvious abnormality that should have been dealt with 8 months sooner. They refused to listen to my ophthalmologist, who was eventually the Dr that sent me to the emergency room, leading to the proper diagnosis.
So now I am left to deal with the consequences. My Oncologist and the first Neurosurgeon assigned to review my case specifically told me there was “nothing to see here.” Well I refused to allow that surgeon to perform my biopsy and moved on to someone that I could trust. My new surgeon had the connections to get me to the Mayo Clinic, and that’s where I am.
I started with a close-cut, realizing that the second surgery would require shaving my head and would leave me with a nice scar to share with Scott…….and work not only on the tumor, but also an aneurysm that was discovered during MRI imaging.
The Aneurysm turned out to be too small to deal with now, but is on my list of items to keep and eye on. The ‘goop’ on my head is surgical superglue; no stitches here. I have no complaints about my Mayo Clinic Medical Team….I feel like they actually want to make me whole again. I now have tiny metal plates holding my skull bone in place.
So I await the planning for my Proton Beam Radiation Treatments. Hopefully home by May and settling back in to my normal life. I’ll find out soon about the placement of the metal alignment pins for the Beam.
Looking forward to the future, how do I feel about my Boulder Team’s Ability to monitor possible tumor regrowth and that aneurysm? That I will explore with the Social Workers here……..
6 thoughts on “Through The Glass: Post Surgical Thoughts on Mis-diagnosis or Missed Diagnosis?”
I’m happy your persistence, and your ophthalmologist’s, got you the attention and care you so clearly needed!
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A lesson that you just never know which Dr will see the truth.
You got this! ❤
Also, that’s amazing about the glue! Does it dissolve or does it need to be removed in some way?
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The super glue eventually softens with washing and peels off. I was told to use baby shampoo. Worked very well, and three weeks later it has all peeled off. And it leaves a fairly flat “scar”. Waiting to see how my hair grows back.
Amazed at your bravery and astonished at what medicine can do!
As I am writing it in April I know that you healed very well.