I’ve been living like this for more than a year. I was told that 3rd Cranial Nerve damage was always allowed a year to see how much it might recover. Monday (August 24th) was my surgery day………….
The next two images show how much progress I had made. Here my eye closed without the glasses. Imagine wondering around for a year with your eye closed….no depth perception, for example:
Waiting the year (and having the Botox treatment) did make my left eye and eyelid a bit stronger. Before the surgery I could keep my eye open, but didn’t because the eyes were not aligned………
Since the eyes were not aligned it caused double vision. Below, my immediate post op photo:
The wound continued to drain overnight, ;eaving my eyelids stuck together by morning. I had to use several hot, wet face cloths to soak my eye (instructions say NO RUBBING), Finally the eye was open:
I will still need still need special glasses to restore near normal vision, but for now I have a ‘sweet spot’ in my current glasses that allow me to see stereo vision. Each day my vision and the coordination between my eyes is better,
Now moving on to the MORE…….That more being further complications from the original tumor. Or rather, complications from the Radiation Treatments. I had very high levels of radiation with the Proton Beam, resulting in Necrosis defined as:
“The brain tissue necrosis is a delayed effect of radiation therapy and can occur several years after the radiation treatment, but it usually occurs within the first 1 to 2 years.Jul 8, 2020“
This Necrosis results in cysts growing in the Cranial Space and surrounding tissue. They started growing sometime after my 6 month check up, appearing in my May exam. The follow-up is every 8 weeks. I have that 8 week check in last week. Some cysts are smaller, some unchanged, and a few new ones have appear (but they are very small). So another MRI at the end of October and we’ll see where we are……
My husband was picking up packages at our PostNet shop. A women had these signes printed to pass out to friends, family, and whoever she might meet. He asked her for one and it it now in our front yard:
And a Flower to Honor all who have died recently at the hand’s of the Police……..RIP:
I hope the my readers are aware of what has been going on in Society. All I can say is that an African-American Woman, if has had a powerful effect on me. But Friday a lovely thing occurred. I found the Stone and Note on my Door Step:
This was great to find after I discovered a disappointment at the Park on Friday. First the Rock Tribute to Victims of COVID:
We had captured a Black Lives Matter Stone, placed there, we thought, because of how much harder the African American Community has been hit by COVID:
Last Friday this had been removed by someone who felt threatened and hateful. But later that evening I found this Stone of Hope on my doorstep from a neighbor:
The Crocuses have made their appearance and My Gardening Season has begun………
Irises, Daffodils, Tulips and Oriental Poppies are sprouting……….
As I have started working on my 2020 Garden, I’ve remembered to Update my Flowers and Gardening from 2019, Featuring the Mayo Clinic Cactus Garden. And Let’s take a final look back at the Lovely Flanders Poppies from 2019:
This Flander’s Poppy is now hangng on my Family Room Wall.
Yes, this is me in my Proton Beam Radiation Mask. It was custom fit and molded to my face during the Radiation Simulation Session. You literally have to be tied down. The method is so precise that any motion would cause the beam to miss the tumor and hit something inside that you might not want to zap. The lasers and pink tape are used for rough alignment. Then low-level X-rays are used to “see” the four pins in my skull for fine alignment. If it looks uncomfortable, it is! And I go in twice a day for treatment. Best thing, I get to take it home with me. I’m going to make a shadow box and display it in my Living Room…….
The pressure from the Mask caused some swelling on the left side of my head to return. Ooops! But it is better this week. It’s stretched a bit and I’ve been working with the Technical Staff to get a better fit.
So I found out the details of the GLOW Club and will be attending on Thursday. Hopefully I can see the accelerator and take picture. I’ll post an update if pics are allowed. Fun Fact: you can actually see the blue flashes of the Proton Beam as it passes within the inter-cranial fluids. Your optic nerve can detect the flashes so your brain can ‘see’ it.
The focussed beam comes through the “screen” behind my head. The screen is so big because it needs to be focussed across a wide range of angles. It moves along the metal track for positioning. Below, a longer view showing the hand grips for more stability against motion. What you cannot see is that my feet beneath the blanket are tied down to the table also.
I’m keeping my hair very short so I can moisturized my scalp to minimize burning. In the image on the right, you can see a hint of the Surgery #2 Scar.
Keeping it short for Radiation
Below, a handy dandy summary graphic taken from the Mayo Clinic Website. CLICK HERE for better viewing.